Wednesday, December 18, 2013

Day 2 - Getting the PICC line

Yesterday was a big day. I needed to get my picc line. That means I get special stuff to get medicine in my veins.

This first picture is me walking into the IR (interventional radiology) room. I'm carrying my bear Boris with me, and I'm walking there with Cassy, one of my nurses on 7 east.


This is a picture of me getting comfortable before I get my picc line. The blanket was very warm. I liked it. 


Dr. Boris! (His real name is Boris.)


After I woke up, I was reallllly dizzy.... (and I barfed... ugh....)


I fell back to sleep again. When I woke up, I wanted FOOD!! Nana was here too.

[Sam woke up with a 102 fever. He contracted a virus since he arrived here, and we think it was RSV. His fever broke later that day, but his mucus was back and his cough had worsened. We are working on clearing him back to where he was before getting the picc placed and going under anesthesia. -dad]


I slept so much, we stayed up pretty late. We had a dance party! We listened to "tempodot" - a song we made using Garageband.

The next morning, daddy found this guy on the coffee pot in the kitchenette. Very funny! Coffee guy...



This is me doing "MOOSE FACE!" (I like that too!)


Later today we played Hospital Bingo. You get a bingo card, and the people in the playroom on the 8th floor call out bingo cards. (Since we couldn't leave our room, we watched the pick cards on our TV.) You can win by getting 5 in a row across, down or diagonally. You can get two wins total. This week was "board game week!" We didn't win. But it was fun!(We were soooo close!)


Later I painted a reindeer! His name is "racer". I painted him red, green, black, magenta, yellow, and blue. (His antlers are green!)


Thanks for everyone's messages on my last blog entry! I'm feeling better, and I hope I'm home soon. Dad says hopefully by Monday. 

- SAM.

[We were shooting for Friday but because he got a fever and contracted RSV yesterday, we are probably looking at a Monday discharge. We know there's a very real possibility that could even get delayed a few days... fingers crossed! -dad]

Tuesday, December 17, 2013

CF bubble 4                                 by Samson

This is my 4th time in "the bubble".

The food is really good. I like their ice cream the best.

The bad part is when I get a pic line. It really hurts when I get it, but it's good for me. It can help me get the medicine I need to feel better.

I'm here because I have a bad cough. I've had the bad cough since before Thanksgiving. To get rid of my cough they're going to give me vest treatments, nebulizers, and medicine through the pic line. (the pic line is like a more long-term I.V.)

This is my I.V. or "wing" for short. I call it a wing because it has a little paddle taped to my left hand to protect my I.V.


Daddy is staying with me. We have lots of games and toys in here too. I'm also writing this blog.



Today I'll get my pic line put in. Until then I am NPO. That means no food until my pic line is in. I'm hungry!

And here's a joke: 
Q: Why did the chicken cross the playground?
A: To get to the other SLIDE!

The hospital is cool! That's all for now.

-SAM